The Interstitial Lung Disease (ILD) Clinic located at the South Health Campus sponsors the Calgary Pulmonary Fibrosis Support Group. The support group meetings are open to all pulmonary fibrosis patients, their caregivers, families and friends and are held the first Tuesday of every month (except July).
Each meeting has an educational portion, with a speaker providing information on the topic chosen for the evening. These speakers are always specialists in the subject matter they are asked to speak on and topics have included: Managing Shortness of Breath, Oxygen Supplementation, Lung Transplantation, Clinical Trials, Updates on Research, Palliative Care, Planning Ahead, Travel Insurance, and much more. Testimonials from attendees are positive and many find it is so helpful to not feel alone in this journey full of such a multitude of challenges.
The education portion of the evening is followed by open discussion which allows members to interact and socialize with others in the group dealing with similar issues in managing and coping. They typically have anywhere from 15-40 members at each meeting and they respect all members’ desire to participate as much or as little as comfortable. They want everyone to feel welcomed and comfortable. Light refreshments are provided and supplemental oxygen is provided at each meeting for those in need.