Become a Member of the PF Society of Calgary

We need your support! Click the button below to become a member. Your membership is free and subscribes you to receive occasional updates regarding our efforts, events, volunteer opportunities and more!

Video Messages sent to the PFSC

See below to listen to video messages sent to us from a couple of special people. The video from Calgary Mayor Naheed Nenshi was sent as a show of support for our collaboration with the Alberta Lung Association in the hope of building "Breathing Space"; a much needed Lung Health and Recovery House that would address the need to help lung transplant patients and their families. It describes a place where patients can literally “catch their breath,” and focus on healing without the financial burden and worries that can often hamper the transplant recovery process. Please click here to learn more or to donate. Thank you Mayor Nenshi for your continued heartfelt support for Pulmonary Fibrosis Awareness!

The message from George Canyon was sent as a show of support for the PFSC and his support of Pulmonary Fibrosis Awareness as a whole. We were so fortunate to receive this wonderful message in support of all those with Pulmonary Fibrosis, their families and caregivers. Thank you George Canyon for your support and prayers and for your thoughtful and heartfelt message, we appreciate it very much!

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PFSC Videos

  • A Message from Mayor Naheed Nenshi
    A Message from Mayor Naheed Nenshi
  • A Message From George Canyon
    A Message From George Canyon

What We Do

Education

Given that IPF affects more people than ALS and kills the same number each year as breast cancer (see here), yet is relatively unheard of in the general public, it is obvious that the level of education and awareness surrounding the disease is drastically disproportionate to the impact it has on the population. Education around Pulmonary Fibrosis is a top priority for the PFSC. We actively work with acute care, hospices, long term care, and home care to educate front-line staff about pulmonary fibrosis care and comfort. We also aim to provide education via our website, through our active social media presence, through distributing information at the various events we participate in or sponsor, through our overpass banners, word of mouth, and more! We also support educational resources available to the public through other sources.

Awareness

Awareness is integral to creating an evolved understanding of just how impactful this disease is on those who live with it. It also helps create a more common understanding of the symptoms which hopefully will encourage people to seek help sooner facilitating a faster diagnosis for patients. We actively promote awareness by staffing booths, distributing handouts and answering questions at various events, through our active social media presence, erecting bridge banners and hanging posters, and through actively engaging those we come in contact with. PFSC Directors have also provided Alberta MLAs with current information at Legislature Days. September is Global Pulmonary Fibrosis Awareness Month and the PFSC successfully advocated to have Mayor Nenshi proclaim September as Pulmonary Fibrosis Awareness Month in Calgary!

Support

The PFSC collaborates with the Alberta Health Services’ Pulmonary Fibrosis Support and Education Group. We also assist in providing support to patients, caregivers, and their family and friends through advocating and sharing about the great monthly support group meetings put on by the South Health Campus Interstitial Lung Disease Clinic. These meetings provide an educational portion with a presentation on a pertinent subject, followed by some casual social time to interact and meet others in the group dealing with the same disease and similar issues in managing and coping. Meetings are live-streamed to locations in Red Deer, Medicine Hat and Lethbridge. See our Support Group page for more information.

Research

We advocate for research into Pulmonary Fibrosis and all its many types. Research is integral to the development of new treatments and to finding a cure for this challenging disease. We promote fundraising which helps provide much-needed funding towards this essential research. We also promote awareness of clinical trials which are a vital part of the research process. Two new drugs have been approved for the treatment of IPF offering the possibility of slowing the disease process for some patients. This was an exciting development as prior to these there hadn’t been a new approved pharmaceutical treatment for a long time. We are excited for the future and have high hopes that this terrible disease without a cure will soon have one.

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Support Group Meetings

The Interstitial Lung Disease (ILD) Clinic located at the South Health Campus sponsors the Calgary Pulmonary Fibrosis Support Group.  The support group meetings are open to all pulmonary fibrosis patients, their caregivers, families and friends and are held the first Tuesday of every month (except July).  The meetings are also live-streamed to locations in Lethbridge, Medicine Hat and Red Deer.

Each meeting has an educational portion, with a speaker providing information on the topic chosen for the evening.  These speakers are always specialists in the subject matter they are asked to speak on and topics have included: Managing Shortness of Breath, Oxygen Supplementation, Lung Transplantation, Clinical Trials, Updates on Research, Palliative Care, Planning Ahead, Travel Insurance, and much more. Testimonials from attendees are positive and many find it is so helpful to not feel alone in this journey full of such a multitude of challenges.

The education portion of the evening is followed by open discussion which allows members to interact and socialize with others in the group dealing with similar issues in managing and coping. They typically have anywhere from 15-40 members at each meeting and they respect all members' desire to participate as much or as little as comfortable. They want everyone to feel welcomed and comfortable.  Light refreshments are provided and supplemental oxygen is provided at each meeting for those in need. Please click here to learn more!

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Donations are Invaluable!

If you would like to donate directly to the PFSC and you do not require a Tax Receipt,
please click the "Contact Us" page and send us a message.

If you would like to make a donation but do require a tax receipt
please click the button below to make a donation through the Canadian Pulmonary Fibrosis Foundation.
Thank you for your support!

Testimonials

I was initially hesitant to attend the meetings and was unsure how well I would fit in since I have auto-immune related PF and not IPF,  but it couldn’t have been a more positive experience and I was hooked after my first time.  My husband and I now try to make it to each meeting and have met so many wonderful people that have become very dear to us.  Everyone is so friendly and supportive and we all learn so much from the meetings and from each other.  No matter what aspect of the disease is causing you difficulty at the time, there is someone there who has dealt with it themselves and willing to be supportive and share their own strategies and tips for coping, as well as just being a listening ear.  The educational portions are always so informative and I have learned so much from them.  I really appreciate that the ILD Clinic sponsors these meetings, and I so appreciate Kirk’s hard work and heartfelt dedication to providing them each month.

Jenn

I have been attending the monthly Fibrosis Support Meetings since March 2013. I remember saying to Kirk that I did not want to attend if everyone was going to feel “sorry” for themselves. He replied hopefully that would not be the case. So I attended my first meeting and was pleasantly surprised to find good humor and wit from a group of people with pulmonary fibrosis.  Over the months we have become closer with little words of encouragement, a gentle smile, nod of acknowledgement and understanding go a long way. We are all supportive of each other in very respectful ways whether it be patients with pulmonary fibrosis, family members and friends. I stopped attending for awhile because our family schedule was busy and realized how much I missed seeing my “friends.” I realize now that we are all learning to manage our chronic condition and that our families also benefit from the support group.

Kathy
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Our Board

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The Latest From Our Blog

Save the Date! Clarke Family Run & Walk for PF

Save the Date!  The Clarke Family Run and Walk for PF will be held Sunday June 4th in Airdrie.  Keep that day free and come and show your support!  Keep in mind that the walk portion is held separately so you don’t have to worry about oxygen tubes or using walkers or wheelchairs and trying […]

A Message From George Canyon

We were so fortunate to receive a wonderful message from George Canyon in support of all those with Pulmonary Fibrosis, their families and caregivers.  Thank you George Canyon for your support and prayers and for your thoughtful and heartfelt message, we appreciate it very much!   Your browser does not support HTML5 video. Big Buck […]

Clarke Family Run in Airdrie

The Clarke Family Run for Pulmonary Fibrosis was held on June 5th, 2016. Please see our previous blog post for the information on Abbie Clarke and why she initiated this wonderful event! A great time was had by all, and the love and support and enthusiasm for PF Awareness was contagious and touching. There was […]

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Pulmonary Fibrosis Facts

Approx. Number of Canadians Currently Living with PF
150000
Approx. Number of Canadians Who Will Be Diagnosed With PF This Year
6000
Approx. Number of Canadians Currently Living with IPF
30000
Approx. Number of People Globally Currently Living with IPF
3000000